Hey guys. Welcome to my blog! A little about me. My name is Supriya and I have alopecia universalis. For those of you who don’t know, at a very high level, alopecia is an autoimmune disease that causes your body to wage a war against your hair follicles. It can come in the form of areata (bald patches), totalis (losing all scalp hair) and universalis (bye bye all hair..its been real). Anywho, this disease has taken me on quite the little journey over the past 3.5 years. So I thought I’d give this blogging thing a go and share my story. The longer I have this disease, the more passionate I become about sharing my experiences in hopes of helping others who suffer from hair loss. But lets be real here, this journey has been tough and I am by no means a picture of perfection. I am just a gal who has things to say and maybe there are a few bald gals or guys out there who can relate. If not, that’s cool too, I’ll just sit here and talk to myself. No big deal. LOL. For my inaugural post, I thought I’d share my alopecia “coming out” social media post circa 2015. Before I get there, I want to share a few other random fun facts about myself completely unrelated to anything of importance. Icebreaker…the blog version.
• I excel at binge watching TV. Give me a series, and I’ll watch a season in a weekend. I probably shouldn’t be bragging about this? Maybe this is why I’m a single awkward cat lady and not a 2 cool for school married person? Hmmm…
• Speaking of, I have a little kitten and he is a wild man. When he isn’t trying to use my arm as a scratching post, he is pretty dang cute. Oh yeah, his name is Neville and you guessed it…I love me some Harry Potter (and periods of ellipses apparently) and yes he is House Gryffindor and I am a Puff…still struggling to figure out HOW I could be single LMAO.
• I’m obsessed with the CAVS and am so sad Lebron wears purple and yellow now. ☹ I mean it legit HURTS. Ouch.
• I love working out but I also love chocolate chip cookie cake…the struggle is SO DAMN REAL MAN!!
Okay enough randomness for now. Trust me there will be way more where that came from. While alopecia is a part of my life, some days my life is like a weird Truman show world filled with awkward encounters and MANY laughable moments that I swear people are filming and laughing at. You best believe I will talk about those too.
I plan on blogging about random adventures in bald life—working out, dating (UGH), wigs, eyebrows, fake lashes, funny mishaps, and whatever else that pops into my brain. If you have something you’d like to hear more about, feel free to shoot me some questions, comments, concerns. I’ll re-iterate I’m no expert in this, I’m just a work in progress willing to share her journey along the way. Thanks for taking the time to read this. Check out my social media “coming out” below and I’ll see ya on the next post boo!!
I’ve been going back and forth about posting these for some time now, but since you’re reading this it means I finally grew a pair and posted 😳. Don’t worry I do not have cancer. I do have an autoimmune disease called alopecia, and two years ago my body thought it would be super fun to start attacking my hair until I had none left. Pretty rude if you ask me. May of 2015 I was doing my hair and noticed a pile of hair in my hands. For the next 4 months my hair fell out by the handful. Finally I caved and shaved the last few strands off and started living the wig life. (I was doing it before Kylie Jenner made it trendy). The summer of 2016 alopecia decided to take my eyebrows. So now they are a combination of tattoos and makeup. Yes that means my first and only tattoo was a face tat. 😧 Finally this year I lost my lashes. I’m now officially hair free. Best disease ever neck down (free laser..am I right?!), not so fun lashes up.
As someone who has been battling depression, anxiety, and body image issues the bulk of her adult life, alopecia was a crushing blow. It’s not all that surprising to me that my biggest medical hurdle to date was caused by my own body attacking itself. Being my own worst enemy tends to be the story of my life.
Losing your hair is a weird thing. Everyone tells you “at least you’re not dying”…which is true and something I’m beyond thankful and grateful for. But losing my identity strand by strand was not exactly the best feeling in the world either. Maybe it sounds vain, but I’ve spent many many tearful days consumed with sadness, missing the person I used to be..physically at least. I was already getting myself out of a rock bottom part of my life when this disease entered my world, and it definitely slammed me right back down to rock bottom in a hot second.
Im not sure why I’m making this part of my life Facebook official now. Maybe it means I’m finally making peace with things? Maybe it’s because through this process I’ve cut out the most toxic people I’ve ever had in my life and replaced them with some of the most amazing humans on the planet who have accepted me, loved me (hair or no hair), and supported me every second of this nightmare. Or maybe it’s just so someone else who may be going through a shitty shitty time can see that things can get better. Because it does get better. Even when it feels physically and mentally impossible. It gets better. Somehow some way.
Either way that’s my story. If you’ve read this far into my novel of a post, thank you for reading. Also I may or may not be throwing up after hitting post. Not nervous about this at all. 😰😰😰😬😬😬😱
PS if you have any alopecia questions, please don’t hesitate to ask!
📷cred: the AMAZING Green Chair Stories